One week to go to day +100! Whoopee! His weekly results have been good so far. Min Ser is quite up and about now. He has driven to work a few times now, on top of him working from home. He has managed to catch up with a few friends as well as attending church Sunday services.
Besides day +100, there is another milestone next week. Next Thurs, 31 Oct, a bone marrow tap will be done and samples taken to test how well the transplant has taken effect and will tell if his current state is truly cancer free.
Let's continue to pray for a clear diagnosis and confirmation that the new stem cells have grafted well into his bone marrow, as well as no more trace of the old defective stem cells.
Wednesday, 23 October 2013
Saturday, 5 October 2013
Day +75
Here marks day +75! Three quarters to day +100.
Min Ser has been getting better by the day. He now takes short trips out to our parent's place and we also occasionally eat out some days (not too crowded places, and food has to be well cooked). He is officially working from home and he plans to go back to work in December.
Min Ser has been getting better by the day. He now takes short trips out to our parent's place and we also occasionally eat out some days (not too crowded places, and food has to be well cooked). He is officially working from home and he plans to go back to work in December.
We still go to Ampang Hospital weekly for his check up. His counts has been good!
Wednesday, 18 September 2013
Day +50
It's been a while since I've posted an update, but felt like today is a good day to post a milestone. Day +50, halfway to day +100!
Why the long hiatus? A mixture of being busy + procrastinating (lazy lah). Though all in all Min Ser's progress has been good, albeit a few down moments (allergy, itchy, skin peeling) which have now pretty much subsided. He still feels tired some days and can't really exert himself much. His appetite is good, though sometimes his tummy still feels out of sorts. If I were to plot a graph of how he feels in general, the line would go up and down from day to day, but the overall trend would be going upwards.
So yeah, do continue to pray for complete recovery and for him to slowly get back to the swing of things. His blood counts has been good, equivalent to a healthy persons. Doc says the bone marrow graft is strong for his counts to recover so quickly.
Latest results will be at his next check up this coming Thursday.
Why the long hiatus? A mixture of being busy + procrastinating (lazy lah). Though all in all Min Ser's progress has been good, albeit a few down moments (allergy, itchy, skin peeling) which have now pretty much subsided. He still feels tired some days and can't really exert himself much. His appetite is good, though sometimes his tummy still feels out of sorts. If I were to plot a graph of how he feels in general, the line would go up and down from day to day, but the overall trend would be going upwards.
So yeah, do continue to pray for complete recovery and for him to slowly get back to the swing of things. His blood counts has been good, equivalent to a healthy persons. Doc says the bone marrow graft is strong for his counts to recover so quickly.
Latest results will be at his next check up this coming Thursday.
Tuesday, 27 August 2013
Day +28
It's been 28 days post transplant and from yesterday's hospital check up, according to Min Ser's blood counts he is doing well. Though physically he still feels odd... his sense of taste is a bit off. Sweet things don't really taste sweet and some food can taste rather plain. Besides that, his digestive system is not optimum, he at times feel uncomfortable after eating.
He is also having slight rashes on his palms and face suspected to be an allergic reaction to an antibiotic given (bactrim). He experienced this before, the week he entered hospital for transplant. At that time it was only suspected that it may be caused by this drug, but since it has happened again, it is quite confirmed. He has stopped taking this particular drug since yesterday and we are to monitor if the rashes is contained in the same areas. This is because rashes caused by skin GVHD also looks the same.
All in all, things are looking ok. He still eats well and rest well (except for yesterday due to the itch on his palms).
Jo and I are doing well. She has been back at home ever since we returned from hospital. She's been going about the house as if she never left. And I'm busy making sure she keeps out of trouble and don't kacau her daddy too much. At the moment she's being entertained by Barney. But not for long... ok. Got to go.
Monday, 19 August 2013
Day +20
We're in Ampang Hospital for Min Ser's first follow up session. Doc says his blood counts are good, and we will only need to come in once a week instead of twice a week. Yay!
Today's counts:
WBC: 4.8
HB: 11.8
P: 213
Today's counts:
WBC: 4.8
HB: 11.8
P: 213
Thursday, 15 August 2013
Discharged on Day +16
Just posting to inform all that Min Ser has been discharged from hospital! Yay! We just arrived home a couple of hours ago. I am so so so elated it's just before our baby Jo's 2nd birthday this Sat!
His blood counts showed good signs of improvement and he can eat solid food and swallow his medication.
He still feels tired and weak but he is overjoyed to be out of hospital. Truly it is a huge milestone to be fit for discharge post transplant.
We will continue to go back to hospital every Monday and Thursday for the next 2.5 months for follow up. During that period he will have to avoid going to crowded places.
He also has to take cyclosporine (anti rejection tablets) at the same time everyday for the next 5.5 months. We chose 10am and 10pm. Very important! So we've set multiple alarms to help remind us.
So yeah, it is a relief to have passed this stage, praying that the worst is over. We are truly grateful for all the prayer support and words of encouragement, and are truly thankful to God for having brought us thus far!
His blood counts showed good signs of improvement and he can eat solid food and swallow his medication.
He still feels tired and weak but he is overjoyed to be out of hospital. Truly it is a huge milestone to be fit for discharge post transplant.
We will continue to go back to hospital every Monday and Thursday for the next 2.5 months for follow up. During that period he will have to avoid going to crowded places.
He also has to take cyclosporine (anti rejection tablets) at the same time everyday for the next 5.5 months. We chose 10am and 10pm. Very important! So we've set multiple alarms to help remind us.
So yeah, it is a relief to have passed this stage, praying that the worst is over. We are truly grateful for all the prayer support and words of encouragement, and are truly thankful to God for having brought us thus far!
Tuesday, 13 August 2013
Day +14
It's been two weeks since the transplant. He is improving slightly. Still hurts to eat and his digestive system is hardly optimum. It's been a week since he has eaten or drank anything so slowly getting his system used to it. He had a little tau fu fah yesterday & chrysanthemum drink. He also had some cereal with milk this morning.
He has some slight diarrhoea but according to Dr Chang, it's quite normal. His blood counts has gone up pretty fast. Pain is more tolerable now and morphine level is reduced to 0.5ml.
Today vs (yesterday's) counts:
WBC: 2.1 (1.6)
HB: 10.4 (10.1)
P: 64 (46)
He has some slight diarrhoea but according to Dr Chang, it's quite normal. His blood counts has gone up pretty fast. Pain is more tolerable now and morphine level is reduced to 0.5ml.
Today vs (yesterday's) counts:
WBC: 2.1 (1.6)
HB: 10.4 (10.1)
P: 64 (46)
Sunday, 11 August 2013
Day +12
Two pints of blood were transfused today as his hemoglobin counts were low. He feels slightly better today and drank a little bit of soya bean. Still hurts to drink. Morphine has been reduced to 1.3 ml.
Today's counts:
WBC: 0.7
HB: 6.3
P: 25
Today's counts:
WBC: 0.7
HB: 6.3
P: 25
Saturday, 10 August 2013
Day +11
Doc prescribed another two days of TPN. Monday onwards he should try to drink liquids on his own.
It seems the mucositis is less severe now. Min Ser says it's less painful, but still too painful to drink. Morphine amount lowered to 1.5 ml this morning.
Based on his blood count results, his condition should improve within the next few days.
Today vs (yesterday's) counts:
WBC: 0.6 (0.4)
HB: 8.0 (7.9)
P: 22 (21)
It seems the mucositis is less severe now. Min Ser says it's less painful, but still too painful to drink. Morphine amount lowered to 1.5 ml this morning.
Based on his blood count results, his condition should improve within the next few days.
Today vs (yesterday's) counts:
WBC: 0.6 (0.4)
HB: 8.0 (7.9)
P: 22 (21)
Friday, 9 August 2013
Day +10
He still finds it very painful to drink. Impossible to swallow solids. He'll still be on TPN (the 'milk') today.
The pain was quite unbearable last night and this morning. So this morning, doctor raised the morphine level to 1.7 ml from yesterday's 1.5 ml. She did mention that his white cell counts are going up causing inflammation which explains the added pain.
He also had a fever of 38C. After taking Panadol soluble and the increased morphine dose, the pain is now more tolerable.
Well, thankfully there is one good news for today. His white cell counts are going up.
Today vs (yesterday's) counts:
WBC: 0.4 (0.1)
HB: 7.9 (7.5)
P: 21 (34)
The pain was quite unbearable last night and this morning. So this morning, doctor raised the morphine level to 1.7 ml from yesterday's 1.5 ml. She did mention that his white cell counts are going up causing inflammation which explains the added pain.
He also had a fever of 38C. After taking Panadol soluble and the increased morphine dose, the pain is now more tolerable.
Well, thankfully there is one good news for today. His white cell counts are going up.
Today vs (yesterday's) counts:
WBC: 0.4 (0.1)
HB: 7.9 (7.5)
P: 21 (34)
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